Last night, Chloe had a great night. She had little to no seizures and her fever went down. So, today at around 3pm, they moved us up to the 8th floor out of the ICU!! Oh my goodness. The pictures that I have for you guys to see. And the videos that I have. Chloe had her second bath today when we got into the room since she's had her surgery. She did not like it at all. She gave Dominique a hard time. So hard that her oxygen was going down, so the sweet nurse, Elisabeth put the oxygen up to her face. Chloe got mad, picked up that oxygen mask and threw it at Dominique! It was the funniest thing! And so cute.
So, Chloe is doing a great job, you guys! But jut keep praying for her that her fever will go down and stay down. Then also that we can go home already!
So, I've set up a paypal accound and trying to get it on here so that if anyone wants to make donations to Chloe and her family, they may do so at any time. It's hard to ask for help or sometimes to even accept financial help. But, since Chloe's been in the hospital, Dominique has missed many days of work and Jeremy has missed some as well. Jeremy has returned to work but Dominique hasn't left the hospital since Chloe's arrival. So, we would appreciate any giving anyone may do. :)
UPDATE:
Last night I wrote that we were bedless to sleep. Well, I told my Mom and they were able to pay for us a hotel and Dominique and I had a great night sleep.
Well, that is all for now. So, keep checking back for more updates on Chloe: God's little miracle.
Saturday, November 22, 2008
Friday, November 21, 2008
Today has been a great day!
Hello again everyone.
I'm sitting here in the computer room of the 5th floor of Vanderbilt Hospital hoping to pass the night away. I currently am without a place to sleep tonight. It seems all the sleep rooms were taken. So, to my dismay, it's either sit here for as long as I can, or go into the waiting room and try to sleep with 8 or more strangers with an unpleasant smell overtaking my nose. You know, the kind of smell that makes your nose tingle without a comforting sneeze? Yeah.. It's horrible. So, I'm willing to fight off sleep and I'll sleep tomorrow. Anyway.
To the real important person: Chloe! I'm so thankful what God is doing with her these past few days after this major surgery she went through. Before surgery, the surgeon told us that afterward Chloe may be paralyzed on her right side temporary. Well, she's not. Before the surgery, Chloe was delayed in focusing on you. Looking to find you when you spoke to her. Following a toy to see it where ever it went. And today we tried all those things with Chloe. She did them all!!!! I'm so very excited for her! I wish I was on my computer so that I could show all you guys the amazing things that she is doing! Her looks, her movement, her smiles. She's a beautiful baby girl. I'm so proud of her.
So, the important news that we have gotten tonight is that if she does well during the night, which I'm assuming that she will, she will get to go up stairs. Out of ICU which will be wonderful. She sat up today and was moving her head around to look for Dominique and I when we spoke to her. Her fever has gone down but is somewhat creeping back up. But, God is going to take care of that. She has had alot of the machines taken off of her. So, we're very excited about that as well.
Again, thank you guys so much for your prayers. And keep checking back, cause you never know when I'll be able to put pictures and videos up here. So, Love you guys alot!
Thanks.
Tiffany - Auntie :)
I'm sitting here in the computer room of the 5th floor of Vanderbilt Hospital hoping to pass the night away. I currently am without a place to sleep tonight. It seems all the sleep rooms were taken. So, to my dismay, it's either sit here for as long as I can, or go into the waiting room and try to sleep with 8 or more strangers with an unpleasant smell overtaking my nose. You know, the kind of smell that makes your nose tingle without a comforting sneeze? Yeah.. It's horrible. So, I'm willing to fight off sleep and I'll sleep tomorrow. Anyway.
To the real important person: Chloe! I'm so thankful what God is doing with her these past few days after this major surgery she went through. Before surgery, the surgeon told us that afterward Chloe may be paralyzed on her right side temporary. Well, she's not. Before the surgery, Chloe was delayed in focusing on you. Looking to find you when you spoke to her. Following a toy to see it where ever it went. And today we tried all those things with Chloe. She did them all!!!! I'm so very excited for her! I wish I was on my computer so that I could show all you guys the amazing things that she is doing! Her looks, her movement, her smiles. She's a beautiful baby girl. I'm so proud of her.
So, the important news that we have gotten tonight is that if she does well during the night, which I'm assuming that she will, she will get to go up stairs. Out of ICU which will be wonderful. She sat up today and was moving her head around to look for Dominique and I when we spoke to her. Her fever has gone down but is somewhat creeping back up. But, God is going to take care of that. She has had alot of the machines taken off of her. So, we're very excited about that as well.
Again, thank you guys so much for your prayers. And keep checking back, cause you never know when I'll be able to put pictures and videos up here. So, Love you guys alot!
Thanks.
Tiffany - Auntie :)
Oh the nurses that we see!!
Hey.
Today is not starting off so great. Well, we don't know how Chloe's night went. We don't know how Chloe is REALLY doing today. Reason why? The nurse that Chloe has today is a, for lack of a better word, dork!
When I entered Chloe's room this morning, she was crying. Chloe never cries. So, I put my stuff in the closet and proceeded to her bedside. I held her hand and told her she was ok that we loved her and asked her if she wanted to sing a song. Well, of course, she did! :)
So, we sang, "Jesus Loves Me" and "You Are My Sunshine". Then she was fine. She closed her eyes and wasn't crying anymore. But, she kind of starts crying then stops. Waits a while then cries again. So, when the nurse finally graced us with her presence, I asked her if Chloe was in pain because she's crying. She said, "I don't know." And that was it!!!!
Dominique tried to talk to her to tell her that she don't normally do this. Something is going on and it needs to be fixed... The lady just looked on her computer and that was it!!
I do not like this nurse at all. So, I've put my information in to talk to the nurse manager to see if we can't get a new one.
Anyway.
There will be more later.
Thanks.
Keep praying.
Love you guys.
Tiffany - Chloe's Aunt
Today is not starting off so great. Well, we don't know how Chloe's night went. We don't know how Chloe is REALLY doing today. Reason why? The nurse that Chloe has today is a, for lack of a better word, dork!
When I entered Chloe's room this morning, she was crying. Chloe never cries. So, I put my stuff in the closet and proceeded to her bedside. I held her hand and told her she was ok that we loved her and asked her if she wanted to sing a song. Well, of course, she did! :)
So, we sang, "Jesus Loves Me" and "You Are My Sunshine". Then she was fine. She closed her eyes and wasn't crying anymore. But, she kind of starts crying then stops. Waits a while then cries again. So, when the nurse finally graced us with her presence, I asked her if Chloe was in pain because she's crying. She said, "I don't know." And that was it!!!!
Dominique tried to talk to her to tell her that she don't normally do this. Something is going on and it needs to be fixed... The lady just looked on her computer and that was it!!
I do not like this nurse at all. So, I've put my information in to talk to the nurse manager to see if we can't get a new one.
Anyway.
There will be more later.
Thanks.
Keep praying.
Love you guys.
Tiffany - Chloe's Aunt
Thursday, November 20, 2008
Dear Friends!
Hello everyone!
Thank you so much for stopping by our blog! We started this blog to keep everyone informed on our beautiful baby girl, Chloe, and her progress through her recovery. My name is Tiffany. I am Chloe's aunt and your narrator. (: Please bare with me as I try and keep this updated as possible. Currently I'm beginning this blog on the hospital's computer they have located in the ICU for the families. So, pictures and videos will come later when I'm available to be on my computer at home. Thank you so much in advance for your patience.
Through this first post, we're going to tell you about Chloe and the blessing that God placed in our lives. She was born on Friday, July 11, 2008, at 8:50P weighing in at 5lbs. 8oz. From the first moment we saw her, she was breath-takingly beautiful! She was scheduled to go home with her parents, Jeremy and Dominique, on the following Sunday, but on that morning, the nurses saw that Chloe was having unusual eye movement and felt she needed to have some testing done. Upon results from those tests, they learned that Chloe was born with an abnormal brain. The left side of her brain did not develop fully and was causing her to have seizures.
She spent one week in ICU at Erlanger Hospital in Chattanooga, TN. Coming home was a great day in our house! It took some getting used to for Jeremy and Dominique. Those middle of the night feedings, changing poopie diapers (which Jeremy loved), and adding one more member to the family was very exciting! Unfortunately, the seizures began to worsen forcing the family to make multiple trip to the ER at T.C. Thompson at Erlanger Hospital. Most trips she was admitted with a stay no shorter than a week. The doctors at Erlanger felt that Chloe was too special of a case for them to handle. So, they gave Jeremy and Dominique a choice of 4 different hospitals with the best neurologists they knew of. Vanderbilt Hospital being one. So, appointments were made to transfer Chloe to Nashville.
September 22, 2008 One monday after just being released from T.C. Thompson, Chloe began have seizures at my parents house in Rock Island, TN. She was on her 30 something seizure for that day, which is alot by the way, and so the family as a whole felt that it was time for Chloe to make her debut at Vanderbilt hospital. They admitted her and kept her for a week. Running tests of their own on her there, and coming to the conclusion that they only way we were going to control these seizures was surgery but they wanted to wait until Chloe was at least 6 months old. The kind of surgery they were going to do for her had yet to be done on a baby of her age. (unsure of the name of surgery at this time. Will inform you guys later)
But, on thursday, November 13, they were heading to Vanderbilt for a doctor's appointment when Chloe began to have a seizure that lasted 45 minutes. That's way to long to be in a seizure. So, instead they took her into the ER where they took care of her. When the neurologist saw her, and her case again, he decided that she needed the surgery sooner than expected and they had an opening on this past tuesday, November 18, 2008. The surgeon spoke with us and said that the risks were high. She could not make it through the surgery, she could have blood transfusions, she could be paralyzed: there were many risks.
But to GOD be ALL the GLORY!!
Tuesday morning started VERY early for us! (: We arrived at the hospital at 6AM where we were allowed to see Chloe one more time. The surgery started at 10:15AM. The only thing we were told every hour was that she was still in surgery and she was doing fine. So, you can imagine the kind of nervousness we had. But as alot of friends have said during that day, no news is good news. So, the only thing that we could do was wait. We played games, we ate lots of food. We laughed, we cried. You name it, we did it. Surgery ended around 8:30PM and the surgeon came and talked with us around 8:45 or 9PM. He told us it went well. Chloe has some bleeding on the brain and so she lost alot of blood at the very beginning. So, during the whole surgery she had 2 blood transfusions. Other than that, the whole surgery was a success. The surgeon said he was happy with everthing that happened with it.
So, at 10:30PM we were allowed to go and see her. That was not a great site to see. She had an incision that started above her right eye on her head all around the back of her head ending above her left ear. We had lots of tears after seeing her, but we know that God had his hands upon her.
So, here we are. Day two after the surgery. She is doing great!! She's had some seizures, but the doctor said that was normal due to the intense surgery. The doctor warned that her right side might be paralyzed but she's moving it!! Slowly, but she is!! The swelling is going down more and more each hour we see her.
Yesterday, the breathing tube came out. Today she's beginning to eat through her mouth again and soon, hopefully, the feeding tube will come out! She's off all IV's except the two main ones. Just don't touch her! She'll tell you to leave her alone! haha But she never cries.
So, thank you to everyone who has been praying for her and my family. We love and appreciate you all!
More to come!!
God Bless!
Tiffany
Thank you so much for stopping by our blog! We started this blog to keep everyone informed on our beautiful baby girl, Chloe, and her progress through her recovery. My name is Tiffany. I am Chloe's aunt and your narrator. (: Please bare with me as I try and keep this updated as possible. Currently I'm beginning this blog on the hospital's computer they have located in the ICU for the families. So, pictures and videos will come later when I'm available to be on my computer at home. Thank you so much in advance for your patience.
Through this first post, we're going to tell you about Chloe and the blessing that God placed in our lives. She was born on Friday, July 11, 2008, at 8:50P weighing in at 5lbs. 8oz. From the first moment we saw her, she was breath-takingly beautiful! She was scheduled to go home with her parents, Jeremy and Dominique, on the following Sunday, but on that morning, the nurses saw that Chloe was having unusual eye movement and felt she needed to have some testing done. Upon results from those tests, they learned that Chloe was born with an abnormal brain. The left side of her brain did not develop fully and was causing her to have seizures.
She spent one week in ICU at Erlanger Hospital in Chattanooga, TN. Coming home was a great day in our house! It took some getting used to for Jeremy and Dominique. Those middle of the night feedings, changing poopie diapers (which Jeremy loved), and adding one more member to the family was very exciting! Unfortunately, the seizures began to worsen forcing the family to make multiple trip to the ER at T.C. Thompson at Erlanger Hospital. Most trips she was admitted with a stay no shorter than a week. The doctors at Erlanger felt that Chloe was too special of a case for them to handle. So, they gave Jeremy and Dominique a choice of 4 different hospitals with the best neurologists they knew of. Vanderbilt Hospital being one. So, appointments were made to transfer Chloe to Nashville.
September 22, 2008 One monday after just being released from T.C. Thompson, Chloe began have seizures at my parents house in Rock Island, TN. She was on her 30 something seizure for that day, which is alot by the way, and so the family as a whole felt that it was time for Chloe to make her debut at Vanderbilt hospital. They admitted her and kept her for a week. Running tests of their own on her there, and coming to the conclusion that they only way we were going to control these seizures was surgery but they wanted to wait until Chloe was at least 6 months old. The kind of surgery they were going to do for her had yet to be done on a baby of her age. (unsure of the name of surgery at this time. Will inform you guys later)
But, on thursday, November 13, they were heading to Vanderbilt for a doctor's appointment when Chloe began to have a seizure that lasted 45 minutes. That's way to long to be in a seizure. So, instead they took her into the ER where they took care of her. When the neurologist saw her, and her case again, he decided that she needed the surgery sooner than expected and they had an opening on this past tuesday, November 18, 2008. The surgeon spoke with us and said that the risks were high. She could not make it through the surgery, she could have blood transfusions, she could be paralyzed: there were many risks.
But to GOD be ALL the GLORY!!
Tuesday morning started VERY early for us! (: We arrived at the hospital at 6AM where we were allowed to see Chloe one more time. The surgery started at 10:15AM. The only thing we were told every hour was that she was still in surgery and she was doing fine. So, you can imagine the kind of nervousness we had. But as alot of friends have said during that day, no news is good news. So, the only thing that we could do was wait. We played games, we ate lots of food. We laughed, we cried. You name it, we did it. Surgery ended around 8:30PM and the surgeon came and talked with us around 8:45 or 9PM. He told us it went well. Chloe has some bleeding on the brain and so she lost alot of blood at the very beginning. So, during the whole surgery she had 2 blood transfusions. Other than that, the whole surgery was a success. The surgeon said he was happy with everthing that happened with it.
So, at 10:30PM we were allowed to go and see her. That was not a great site to see. She had an incision that started above her right eye on her head all around the back of her head ending above her left ear. We had lots of tears after seeing her, but we know that God had his hands upon her.
So, here we are. Day two after the surgery. She is doing great!! She's had some seizures, but the doctor said that was normal due to the intense surgery. The doctor warned that her right side might be paralyzed but she's moving it!! Slowly, but she is!! The swelling is going down more and more each hour we see her.
Yesterday, the breathing tube came out. Today she's beginning to eat through her mouth again and soon, hopefully, the feeding tube will come out! She's off all IV's except the two main ones. Just don't touch her! She'll tell you to leave her alone! haha But she never cries.
So, thank you to everyone who has been praying for her and my family. We love and appreciate you all!
More to come!!
God Bless!
Tiffany
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